Resources for Education and Support |
| Name |
Comment |
| American Heart Association - Children's Health Section |
The American Heart Association provides credible information about heart disease and stroke. This link is for the children's heart disease section, and contains information regarding diseases, conditions, and treatments for children. Information about congenital heart defects, such as patent ductus arteriosis (PDA), transposition of the great vessels, and other heart defects that are present at birth can be found here. |
| Breastfeeding the High-Risk Newborn |
Information from the University of Virginia regarding Breastfeeding to a premature or other high-risk baby. |
| The Center for Loss in Multiple Birth (CLIMB) |
This is a website developed by the non-profit organization, CLIMB. The director is a social worker by training. The site offers useful information for families, support systems, and professionals and is in Spanish, English, Russian, Chinese, and French. |
| Hydrocephalus Association |
The mission of the Hydrocephalus Association is to provide support, education and advocacy for individuals, families and professionals. Their goal is to ensure that families and individuals dealing iwth the complex issues of hydrocephalus receive personal support, comprehensive educational materials, and ongoing quality health care. |
| March of Dimes |
Useful educational information for parents of preemies, free information for families who experience loss, on-line NICU support. |
| March of Dimes (Oregon Chapter) |
Local information associated with March of Dimes |
| Mayo Clinic's Premature babies: Facing the challenge of intensive care |
Information on this site was developed by health professionals at the Mayo Clinic for parents of premature infants. |
| My Sick Newborn |
This is a well-done, user friendly website for NICU babies who are not preemies. It is supported by the department of pediatrics at UW-Madison. |
National Eye Institute Resource Guide - Retinopathy of Prematurity
|
Information on this site was developed by the National Eye Institute (part of the National Institutes of Health) to help patients and their families search for general information about early treatment for retinopathy of prematurity (ROP). |
| The National Marfan Foundation |
Information for individuals and families affected by the Marfan syndrome and related disorders. |
| National Organization of Mothers of Twins Clubs, Inc. |
NOMOTC was founded in 1960 for the purpose of promoting the special aspects of child development which relate specifically to multiple birth children. The organization's goal is to improve public awareness of the needs of multiple birth children by fostering development of local support groups, enhancing the quality of educational materials available to parents, educators and others and by cooperating with and participating in research projects which involve twins and/or their families. |
| Parents of Premature Babies Inc.(Preemie-L) |
Parents of Premature Babies Inc. (Preemie-L) is a registered non-profit foundation providing support to families and caregivers of premature babies. Support is offered primarily through the Preemie-L Discussion Forum and the Preemie-L List, where new parents and those with older children can share their stories and concerns. Neonatologists, nurses, authors, and pediatric specialists also contribute to the discussions. Preemie-L holds conferences four times a year in addition to recommended booklists and resource pages. |
| Parents of Preemies |
This is a well-done, user friendly website for parents of preemies. It is supported by the department of pediatrics at UW-Madison and has information in Spanish and English. |
| Preemie Magazine |
PM is a free print publication and online community for parents of preemies. |
| Preemie Parents |
Information about a book for Parents of Preemies |
| Share: Pregnancy and Infant Loss Support, Inc |
A helpful and informative site for families who experience loss. |
| Starbright Foundation |
Starbright creates innovative media-based programs that help serious ill children and families cope with their disease. |
| The Triplet Connection |
The Triplet Connenction is an international "network of caring and sharing for multiple birth families" which was founded in 1983. |
Links to the Hospitals where you can find Precious Beginnings Volunteer Programs |
| OHSU/Doernbecher Children’s Hospital |
Doernbecher Children's Hospital, the first full-service children's hospital in the Pacific Northwest, offers comprehensive, full-spectrum pediatric care for hospitalized children. Doernbecher is a branch of the Oregon Health & Science University (OHSU). At Doernbecher, we recognize the family as a child's primary source of strength and support, and we count on parents to be our partners. |
| Legacy Emanuel Children’s Hospital |
Legacy Emanuel Children's Hospital is a full-service 155-bed children's hospital, one of the largest children's hospitals in Oregon. With more than 90 pediatric medical and surgical specialists and 85 community pediatricians, we offer outstanding healthcare in a family-centered environment sensitive to the special needs of children and their families |
Major Donor Appreciation |
| Baja Grill |
Thank you for donating pizza to our Pizza Night Support Groups. |
| Oregon Photo |
They have a donation program at their store. Customers can direct a portion of their money to various charities.
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